I had a bad exacerbation a few weeks ago, my whole body from my chest down became numb, (arms and hands included) and after 5 calls to my neurologist I went to have an MRI and it was found I had new lesions on my spine. At that time it was decided that I would be given 4 days of high dose solemedrol steroids at the outpatient infusion center. I was also on antibiotics due to an UTI, which probably caused this flare as well and was in my 6th week of Tecfidera and the meds I need to take due to this new medication. Needless to say, I was really sick.
Be patient, I am setting this story up. I take Gabapentin, Lamotrigine (both for MS pain), high doses of Vitamin D, probiotics, cranberry pills, Tecfidera, and Clonazepam for really bad anxiety.
I had to go into the office since my primary doctor left (I know why now) and I needed to get a new prescription for Clonazapam since it had expired. I take .5 mg once a day which I cut in half and take half in the morning and half at night. I decided that since this office was close to the infusion center I would go after my 3rd infusion to see this new nurse practitioner. OK MISTAKE, I was buzzing at this point but I was going to run out of my medication so I thought it would be ok.
She walked into the exam room. She looked at my file on the computer. She proceeded to tell me I was an addict. I was addicted to all my MS medications (Gabapentin and Lamotrigine) and should go off them right away. They are not serving any purpose. She kept on repeating, “I know, I can look up these meds so you are not fooling anybody.” She asked me about Clonazapam and asked me why I was on it. Again she said, you are not fooling me, I can look this up. Really BITCH, I want to choke you right now; I am full of steroids. I told her I have really bad anxiety which was probably due to MS, I get very frustrated and lose patience very easily which is not like me. She then accused me of refilling this drug more than I should. WHAT???? REALLY? I can only get 3 months at a time and can’t refill it until 3 months later, it is impossible to do that. She looked at me and accused me of getting it off the streets. What the FUCK!!!!! I told her no and then she told me it was just a matter of time that I did. I was an addict, she knows because she can look it up.
She ended up giving me a prescription for Clonazapam with no refills and I left shaking. I HAVE ANXIETY BITCH AND YOU MADE IT WORSE RIGHT NOW NOT TO MENTION THE BUZZING IN MY BODY FROM 3 INFUIONS SO FAR OF STERIODS. She was lucky I didn’t have a gun.
Needless to say I left so sick and proceeded to be that sick for days. She really messed me up so bad; I was having an EXASERBATION BITCH..
I really really hate people who think they know everything just because they are a nurse or doctor. This nurse admitted she didn’t know anything about MS and I really think she didn’t know what the initials MS meant.
I am still steaming about this after 2 weeks now. What a BITCH. I am not ever ever going back there and have already acquired a new primary doctor. In that practice they only have nurse practitioners working right now. I know why my doctor left without any notice. I really loved her and hope the best for her. I just know this place is not good for her.
I am still so so pissed off and can’t let it go. I have a brochure with this bitch’s face on it so I am taking it to my neurologist. I will tell him about this visit. I hope he calls her out of it. Stupid bitch.
Carry on.
Thursday, October 10, 2013
Friday, October 4, 2013
Im not taking any Multiple Sclerosis meds! I'm getting worse, lots of lesions! I need to put my big girl panties on and take medication! I will be taking Tecfidera!
I have always been afraid to take medication. I have been like that all my life. Now I have Multiple Sclerosis, need I say more?
I was brave and took all the ABCR’s as well as IVIG, steroids. I was a good girl but hated the side effects as well as the needles. Lots of medication now; some for spasms, some for bladder, some for anxiety, vitamins, etc., I am so sick of it!
I just saw my neurologist a few weeks ago. I am getting worse, lots of lesions, hey I know it; I can feel it. After a lot of thought, I decided to be brave now. I need to put my big girl panties on and take medication. I will be taking Tecfidera. Ugh!
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