I hate the heat1 I mean I really hate the heat. I have to backtrack here for a bit so bear with me.
I was diagnosed with MS in August of 2000 having symptoms for 14 years. I was diagnosed with everything under the sun before this happened, Epstein Bar Syndrome, Chronic Fatigue, Ulna constriction (which I have had 3 elbow surgeries), compressed discs in my neck(2 surgeries) and Hypoglycemia. Well anyway, I was diagnosed with MS in San Francisco (I know about this because my neurologist gave me a MSbook to help me understand what it was) and moved to Monterey, California. It was cold and damp. You think hot is bad, try cold and damp. Anyway I got this wild hair and decided to move closer to my son in Arizona. OK, that’s a good idea because in Monterey I could never get warm (everyone thought 80 degrees was a heat wave), so Arizona would be warm and I would love it.
What was I thinking #^%#(&^)^)(&_&*.
OK, yes it is a dry heat (and I want to hit the person who said that) It is HOT. I have actually wanted to crack an egg and put it out on my patio to see what would happen.
So I had to see my doctor today, it was a cool 106 degrees and of course I had to wear my braces, one for each leg. I have created a fashion statement with these braces. I wear black socks so I guess they look like boots because people keep telling me they love my boots. Why would I wear boots when it is 106 degrees, really? OK anyway they look like the shoes Abbey wears from NCIS. So now being so hot outside I don’t even have to tell you how hot they make me but I guess I should be happy because they are fashion Goth. I feel like I have MS when I take them off. OK fantasy gone.
So I started Tecfidera. When I went outside with my dog my skin felt like it was on fire. I have to say it was 115 degrees on that day and sometimes I hate my dog because she won’t do her business without me. So I got my umbrella to see if that would help and felt really stupid and my dog kept looking at me funny since it was not raining. I could only stand it for about 5 minutes and proceeded to call my doctor who told me not to go out during the day…….REALLY? Now I truly felt Goth and it really sucked. I hate the heat.
This heat is allowing creepy other people to take over my body. It slurs my words; it is like I am speaking another language. I dare not talk to anyone during these times and feel like I should start speaking with my hands.
And don’t even let me get into what it does to my bowels, yes bowels I said it. They just have a mind of their own. Bad Bowels.
And let’s talk about the fatigue you get in this heat. I feel like the Queen barely raising my arm to waive. I think the better term for it would be SLUG. My brain won’t work; I have to take out my name from my brain so I can fit another sentence in it and then forget it (I really hate when that happens).
I do have a cooling vest. I also have these fashionable wrist bands as well as a cooling cap. Now I feel SNAZZY. But in Arizona I can honestly say they work for about 5 minutes and then you are a goner. I just work up a sweat running in and out to keep watering them down to keep cool. So I don’t use them that much but I am glad I have them.
Heat, I hate it. I really miss the coldness of California and can’t go back there because it is too expensive to live there, now that I am disabled and on a limited budget. But that is a rant for another time.